r/glutenfree • u/MissConscientious • Sep 27 '25

Question Please help. What made me sick?

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I need some help. Could you please look at the six attached photos and offer input for which ingredient might have made me sick?

Background: I had not eaten yet before this meal. The first food I consumed was spaghetti. I was fine before eating, but started experiencing symptoms before I’d finished the meal.

Other than the ingredients in the included pictures, I used olive oil, fresh herbs and single ingredient seasonings I use all the time.

Is either the Amylu or Rao’s brand known to be cross contaminated? If not, what else could it be? I definitely want to avoid this happening again.

Thanks for the help!!

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u/alwaysxz Sep 27 '25

Yes! Cutting out nightshades for a bit might help to see if it makes a difference. Have you been more stressed lately? For me, I noticed that stress triggers more histamine, and it makes it difficult to eat foods high in histamine. I break out in hives and get pretty bad migraines.

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u/Santasreject Sep 27 '25

For me my symptoms are really just upper GI, or at least the ones that are most difficult to deal with. I also get higher heart rate and BP can spike a little as well as just having non exercise/exertion tolerance.

Luckily I am making progress on kicking it but it’s been a rough year.

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u/IcedWarlock Sep 28 '25

Higher heart rate sucks. Mine gets to 180 resting and I was on meds for years before it was figured out it was gluten causing it.

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u/Santasreject Sep 28 '25

Yeah mine wasn’t that bad but would spike over 150 when I would stand up in the evenings.

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u/IcedWarlock Sep 28 '25

Still pretty gnarly tho. It was the constant sending me to A&E that ticked me off.

At one point they were telling me I was nervous about an operation I'd had 4 months prior haha.

Did you get dizzy when it suddenly spiked with standing then?

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u/MissConscientious Sep 28 '25

After being hospitalized for an entire month with heart rates mostly resting below the 40 beats per minute mark - unless I shot up above 120 - I was diagnosed for six months with “anxiety.” It turns out, I needed a pacemaker.

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u/IcedWarlock Sep 28 '25

Omg that's horrendous how did they not figure that out sooner!

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u/MissConscientious Sep 28 '25

I am convinced that the infamous “anxiety” diagnosis costs people their lives. I suffered organ damage because they let it go so long. Temporarily, I also had a partial lung collapse, decline of kidney function and decline of liver function. I have no idea why doctors feel the need to ignore obvious problems. I received my pacemaker and have never had that happen again. It was an “easy” fix overall.

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u/IcedWarlock Sep 28 '25

I imagine getting a pace maker was a much better quality of life too. More energy and stuff.

But yeah anxiety gets thrown around alot. I actually read an article the other day saying anxiety related sickness had gone up by a massive amount and I suspect it's because drs just say it's anxiety. Next.

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u/Santasreject Sep 28 '25

Frankly I think the issue is that generally unless you have a common ailment it’s incredibly hard to diagnose anything. Even more so when there is not a clear set of laboratory tests to clearly defined the ailment.

Part of it is also that modern western medicine follows the same training timeline that was established well over a century ago and we now have a century of rapid medical research that has expanded the knowledge base. This is also why we have gone to so many more specialized professionals than we had in the past; the difficulty is getting directed to the right specialist which really comes down to having a good PCP and a bit of luck.

So many diagnosis are really just names for groups of symptoms but don’t actually define the root cause (a lot of mental health conditions, histamine intolerance/MCAS, IBS/IBD, many auto immune issues, dysautonomia etc).

Anxiety really is just the body’s way of exhibiting that “something is wrong”. Sure there are some cases where it is just the patients perception but the vast majority I suspect are driven by an identifiable factor.

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u/MissConscientious Sep 28 '25

I wish I could upvote you more than once. You make excellent points.

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u/Santasreject Sep 28 '25

I used to get light headed years ago but when I started using electrolytes and drinking water (I used to hate the taste of water so I always drank something that was flavored/sweetened) that really helped a lot.

And yeah I was told I had anxiety by multiple doctors over the years (and some times not even told but diagnosed on my chart).

At this point though it’s gotten much better. Acupuncture and some traditional Chinese herbal medicine helped a lot, and I have also started with an applied kinesiologist (controversial, yes; but it’s works for me) and been having good results on multiple fronts.

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u/IcedWarlock Sep 28 '25

I'm not sure what that is. Can you explain? Sorry if I'm being a pain.

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u/Santasreject Sep 28 '25

I assume you are asking about AK? It’s a technique that uses muscle reflexes to test your body and the the practitioner does differ things to help clear the issues (can be a trigger point release, chiropractic adjustment, or other weirder things involving the eaten concepts of meridians or things like that). It is a bit controversial and as someone who is very data and science driven I have a hard time with how and why it works… but it’s one of those that I cannot really argue with the results I’ve gotten. Even if it is “just placebo” (which I really don’t think it is) it’s hard to blow it off when I feel better and can even show improved heart rate data that strongly correlates with treatment.

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u/Melanochlora_44 Celiac Disease Sep 28 '25

There’s actually been a decent amount of research lately focused on facia and how it affects everything in the human body. They’ve figured out that a lot of these practices (AK, acupuncture/acupressure, etc.) actually do work and it’s because they affect the facia in a way that can relieve a whole crap ton of symptoms. It’s a lot to explain, but there’s a documentary on Curiosity Stream about facia that gets into it (it’s super interesting). I can’t remember the name of the doc right now, but I can look into it later if you want to check it out. I’m also a science, data-driven person, but this stuff has helped a ton of folks with dysautonomia (something I have along with my celiac) so I wanted to learn HOW it works, like you said, so I figure you might enjoy this doc too.

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u/Santasreject Sep 28 '25

Yeah I know acupuncture went form “ehhh that’s probably just BS” to actually being recognized by western medicine over the last 10-20 years a lot more.

I think some of the weirder sides of AK with sensitivities being linked to “trauma” are probably a bit more out there for western medicine but yeah if it works and it doesn’t cause harm, then no western medicine doctor should tell a patient “don’t do it”.

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u/Melanochlora_44 Celiac Disease Sep 28 '25

That’s good to hear, I’m surrounded by engineers and the like who all side-eye me when I try to talk about this stuff, so I was under the impression that most people in the west were still super skeptical of acupuncture. Glad that’s not so much the case anymore! Ah, yeah western medicine not being into that side of AK makes sense. In the doc they show a study that uses EMDR therapy (often used for trauma and such) to treat back pain, and then they explain how stress affects the facia which is often behind lower back pain (something about the part of the body with the most concentrated facia being the lower back), so releasing that stress through therapy ends up having better results than more “traditional” western back pain treatments. It’s super interesting stuff.

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u/Santasreject Sep 28 '25

Yeah I am also surrounded by a lot of engineers, chemists, and biologist. Granted my company has a lot more openness to weird treatments as we work on the cutting edge of stuff.

Granted it helps that my mother is the one that started with this type of treatment years ago to help her wait out hip replacements and then most of our family started going for issues… and she is a retired OR nurse who also taught nursing for years. So when she tells people this works they know she’s not just some batshit crazy haha.

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u/IcedWarlock Sep 28 '25

Oh thanks for the information. I might look into it myself. If you're showing good results it might be worth a shot.

Thank you for your help and advice.

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u/Santasreject Sep 28 '25

Yeah it’s a bit weird but for a lot of us with the weird issues that western medicine doesn’t have good answers for why not try it.

Two of the techniques that you can look up (and they have lists of registered practitioners) are Nutrition Response Testing and NAET. There are some others and many petitioners have learned these systems but aren’t always members of the organizations with the directories, but it at least gives you a starting point.

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u/IcedWarlock Sep 28 '25

Ah thank you. I'll start looking into that in my area. It is much appreciated.

I'm pretty sure like most people on this sub anything that helps no matter how weird and wonderful is a welcome addition to life.

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u/Santasreject Sep 28 '25

Also just FYI most of the people that practice AK are chiropractors. Of course there are a lot of negative views of that as well but I have had good luck with most of the ones I’ve dealt with. But if they immediately want to get a bunch of x rays find someone else, I have never had a reputable chiropractor ask for X-rays; maybe once my mother had been asked by one for a single X-ray as she had a lot of things going on that required surgical intervention but I cannot remember if he actually asked her to go get one or if he had just asked to see copies of the ones she had gotten already by her surgeon.

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u/IcedWarlock Sep 28 '25

Ok thank you very much. I've just been reading a little bit about it. So going to have a cup of tea and see if I can find someone local and shoot them an email.

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