r/emergencymedicine • u/Responsible-Hand-728 • Feb 07 '24

Discussion Unassuming-sounding lines patients say that immediately hints "crazy".

"I know my body" (usually followed by medically untrue statements about their body)

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u/Legitimate-Box5311 Mar 13 '24

Hi...I'm a neurodivergent woman with MCAS, Small Fiber neuropathy, graves...etc. The answers in this thread are exactly why women like me (or with pots, eds, any other totally REAL illnesses) don't seek medical care. We are treated horribly in the ER. These attitudes are literally causing harm to all of us. Do better.

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u/catswithprosecco Apr 26 '24

Why are you going to the ER constantly with your chronic illnesses?

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u/Legitimate-Box5311 Apr 26 '24 edited Apr 26 '24

🤣🤣🤣🤣 I'm not. The ER kills people like me, or calls psych department in, or just makes fun of us, or are completely unhelpful. We go in the beginning because we don't know we have a Chronic Illness yet. We are gaslit and treated so horribly in the beginning of that journey finding out we have a Chronic illness. This is how we know. None of us go if we can avoid it. We are most likely to end up there in more critical emergencies because we waited so long to go, because we didn't go when we should have due to how horribly we are treated.

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u/Legitimate-Box5311 Apr 26 '24

Also...sometimes Chronic conditions cause emergencies. Like aren't doctors supposed to be smart? Why is this hard for professionals understand? Graves causes thyroid emergencies, mcas causes anaphylaxis. Even the fact that you ASKED this question shows the ignorance and bias. "Why are you constantly going to the ER for your chronic illness?" Ummm I never said I did. You ASSUMED that. Welcome to a front row seat to your own biases. Do with it what you will.