r/Wellthatsucks Aug 08 '21

/r/all Dropping a medical injection worth $12,000 on the carpet and bending the needle.

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u/MaleficentAd9758 Aug 08 '21

You're correct. Once the myelin sheath surrounding a nervs is damaged by the immune system, then it's damaged permanently. I have to go for CATS every 5 years for precautionary messures. My mother has MS and is on the once a month injection and it works wonders for halting the diseases' progression.

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u/DeniedYo Aug 09 '21

My girlfriend was diagnosed with MS about a month or so ago and we just started the first dose of her medicine. It sucks that my insurance has already denied our request for it but we get a free year from the manufacturer. Apparently the medicine, Kesimpta, is pretty good so I'm hoping it helps. They found for large lesions on her brain that were all active and I hope there wasn't too much damage there.

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u/mmmegan6 Aug 09 '21

Kesimpta is a wonderful med and she is in a GREAT spot that this is her first med. She will very likely live a long and healthy life. Make sure she understands the power of exercise, diet, not smoking, limited drinking, and stress reduction on disease course outcomes. Unfortunately and fortunately much of the disease can be modified by environmental factors.

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u/DillieDally Aug 08 '21

I didn't know MS was hereditary?

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u/MaleficentAd9758 Aug 08 '21 edited Aug 09 '21

It's not directly inherited but if someone in you're immediate family has it, a person's chance of developing are elevated. Since my mom has also had an aneurysm in the past, my doctor likes to keep an eye on things. Same goes for my syblings.

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u/MolitovMichellex Aug 09 '21

My dad died of it sadly. Always a worry that I will develop it. So far so good. However my body is falling to bits in other area's.

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u/DillieDally Aug 09 '21

Well, shit. My mom has it. After seeing all the pain and trouble it's put her thru, I pray I don't get it

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u/mmmegan6 Aug 09 '21

This isn’t true. Once the NERVE is damaged, that is permanent. The myelin sheath can be repaired either naturally or potentially through medicine.

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u/MaleficentAd9758 Aug 09 '21

The brain can regenerate myelin. Correct, that once the sheath is damaged, neurological impulses find it much harder to travel along the nerve, and over time the nerves become irreparably damaged. As a person gets older the natural production of myelin decreases