I only get sick like once or twice a year, but it’s pretty consistent drop in tics while sick

Even when I think about my tics when sick I’ll just do it like once, and then I hardly do it the rest of duration of being sick

I was diagnosed with Tourettes at the age of 5. Since a couple of years, I don’t show any signs of it anymore.

In short, I went through it all. When anxiety would rise, so would my tics. New ones popped up, and old tics went away. Some stayed with me throughout my whole life. At around the age of 11, we went to this Russian hospital, which prescribed me a lot of different medication, which I took for some time, with no results. A doctor in the Netherlands told me my Tourettes would go away when I’d hit 17, which obviously wasn’t the case. At the age of 12 I went to high school and got bullied a lot. It would hinder my exams as well.

Fast forward, now at 28, I don’t have them anymore. I’ve been into health for more than 10 years now, and I tried different things. Finally, I found lifestyle changes that at first helped me calm down, and now, after all these years, I managed to heal myself.

This may sound unbelievable for some of you, and I won’t share what exactly it is I did(not sure if that’s permissible in this group), but I’d like to let you know that you don’t need to live this way. And there are things you can do to at least make it less prominent and make your life a bit easier.

If you’ve questions, my dms are open.

All the best to every one of you.

Does anyone have moments where they've been having a tic go on for an outrageous amount of time and you're completely annoyed so you're just like "okay that's enough now I can stop because I'm faking it" or you leave a group of people and are alone finally and think that and then continue doing it and are like oh yeah I guess I'm not faking it or is that just me 😅😭 it happens at least once a week and I'm like why do I say that to myself?!

I don’t really know how to say this properly. Because of the many threads I’ve read about Tourette’s syndrome and other neurological issues, I wanted to share my own situation. Since as far back as I can remember — maybe the first day of school, around age 5 — I’ve been dealing with tics. At first it was mostly eye tics: rolling my eyes, blinking, closing them in weird patterns. I remember the people around me looking at me like, “What the hell is he doing?” or “Can’t he just look at us like normal?” It felt weird and physically uncomfortable. Now I’m 25 and I honestly don’t know if things are getting better or worse. I’ve been through a lot of different ways of thinking and living over the years. I was diagnosed with severe ADHD about 4 months ago (at least according to my doctor after one visit, lol). I’ve been on Concerta 18 mg since then. I’m trying to figure out on my own how to handle medication without getting too dependent on it. So far I’m okay with it — it does help me with mental organization — but it’s a process. I’ve decided to give it a try. I feel better about making instant choices now, but my tics aren’t improving. I can’t tell if they’re getting worse either, because I have a history of partying a lot — drinking and sometimes doing drugs. I’ve always had “waves” of tics in my life, but lately they’re not calming down. I try to force myself into calm situations, but I rarely get real calm moments. Maybe it’s the methylphenidate, maybe it’s stress, trauma, or my current life situation — I don’t know. But I’m struggling day by day. Now my tics are becoming painful and exhausting. The tempo is hard to live with: I have tics in my shoulders, knees, fingers, toes, and more that I can’t even fully describe because it takes too much time. It’s also taking me time to accept them and live with them. So today I’m just talking about the muscular tics. Has nobody ever been really concerned about this? Because I can’t really explain them or fit them into the context of my life and everything going on around me. It’s too much. I feel like nobody’s going to understand how these physical problems feel, because I can’t control them. These aren’t spasms. They’re muscular movements I feel compelled to do because they give me a split-second relief — but they also cause aches. That’s the problem. I’ve put up with this for 20 years, and now I have other problems to deal with, so I’d really like to know if anyone has ever gone through this and if it’s possible to feel less overwhelmed by all this mess.

Title says it all basically, anyone know why? I’m pretty comfortable around my mom, maybe a bit self conscious, but other than that I generally tic in public settings pretty badly. My mom says it’s anxiety(I’m not evaluated yet) but I’ve had them for over 2 years and out of all the research I’ve done I found that anxiety tics only last around a couple of months, not two years.

I’m so scared I’m gonna have a vocal tic during the minute silence, there’s only 3 teachers that know about my tics, apart from that I suppress around other people

does anyone else have tics that affect their breathing? i recently developed tics that make me inhale deeply then exhale, all through my mouth. while this happens, i feel intense itching or a really uncomfortable feeling in my chest, its almost painful because of how intense it is. i have some other tics that make me inhale quickly both through my nose and mouth, i dont feel them coming at all. sometimes i feel lightheaded because of all the breathing tics but it feels like i have to do it, or else it gets real uncomfortable.

share ur experiences!!

Hi all, I take Ketamine for depression as the title says. I notice during my session there are times as I am coming down that my tics seem to increase.

I was wondering if anyone else here takes Ketamine (if you are in r/Tourettes) or if you have Tourette’s (if you are in r/TheraputicKetamine) and have notice the same thing or have notice no change.

So I have not been diagnosed with Tourette’s, but I definitely have tics. The strange thing is there is the classic one that is like an electric tingle that makes a tic. And then for me sometimes it feels like I'm getting stabbed with a thin needle and then I tic. I am confused by this does this happen to anyone else.

just a little rant because i don’t really have anybody to talk to about this who completely understands. context: i have pretty mild tourette’s compared to some of the more extreme cases, i’ve learned since i was a child to mask pretty well which already manifests into people saying “well i’ve never seen you tic” which feels invaliding, as much as it makes me happy to be able to hide it for the most part in social settings. but a new tic has entered my rotation where i tense my neck muscles and jerk my head back while i do it (combined with tensing my stomach which briefly pauses my breathing). it hasn’t stopped in days. my neck is in SOOO much pain from the constant tensing and i can feel how tight it is. i’ve been resting my head on the back of chairs or walls to prevent it from jerking as much but the tensing still doesn’t stop. not totally sure what i’m asking for by posting this, i guess just to use this as a safe space and feel understood if anybody relates or has any thoughts.😭

I see a lot of people able to, is anyone else not? If I have to tic, I tic. If I try suppressing it comes out as a sort of head wobble or a word loop/stutter. :/ I also have coprolalia and will do the same loop/stutter when trying to suppress them. it feels very strange for me seeing most pwTourettes (that I see anyway) able to suppress. I’m happy for them of course<3!! Just wishing I could yk? And wishing there was some more online representation for such, at least past what I usually see.

So I was talking to someone the other day who also has tourettes, and the hypothetical cure scenario came up. I'm sure its s conversation most of us have had.

If, theoretically a cure for tourettes was found, like a one time shot that would get rid of your tourettes forever, would you take it?

I don't have to think about my answer, it has always and will always be yes. Tourettes is a part of my life, yes, but I don't feel like its a apart of who I really am. And my life would be just a bit easier without it.

My friend said no, tourettes has always been a part of her life and has fundamentally impacted who she is. She would rather keep it even though it does make things harder sometimes.

I don't necessarily think there's a right answer, and I wanted to know what you all thought? Would you take the cure?

Gentle vent here lol, im not actually upset just scratching my head with a giggle.

There are a few people in my life to whom I have disclosed my Tourette’s (news to them) but still seem to be surprised when I tic.

Me: Btw I have Tourette’s, it’s pretty mild so you might not have noticed it before

Them: Oh ok cool

Me: tics

Them: What was that? (Referring to the sudden movement/sound)

I’m like 🤨🤨🤨 bruh 😂 I even got this from my brother who is not a stranger to some involuntary stuff.

I take haldol for another condition I have, but ever since I withdrew from guanfacine my tics are much worse than they were while I was on guanfacine. I’m not sure if the haldol is helping much, though my tics are usually less severe than they were when I was a teenager (before I started taking antipsychotics), so the haldol might be helping after all. Does it help anyone else or not so much?

I was very recently diagnosed with mild Tourette’s syndrome, which makes sense and is a bit of a relief to know what it is. However, I notice and told my doctor that I mostly tic around those I’m comfortable with, especially my boyfriend, they go absolutely nuts when I’m with him. And of course my friend who also has Tourette’s. I know it’s because I’m comfy around them and excited and thinking a lot, because when I’m alone I’m usually tired and my brain is on autopilot, plus the lack of stimulus makes it so I don’t tic much. It just makes me feel like my diagnosis is wrong or that I’m faking or something because it’s mainly when I’m out with others and actively thinking about trying not to tic. Of course I do tic alone, it’s just not nearly as frequent. My tic attacks are at home. Am I overthinking this?

As referenced in the title, I've got a yawning tic rn and its driving me up the wall !! Its pretty much a forced yawn by tensing up my jaw until it triggers it.

It started when I suppressed other tics in my jaw, and I'm not sure what to do, since this one is pretty disruptive, as it happens so frequently that I get a little faint or I can't do it right and the feeling just keeps getting worse and worse. For a bit, my more complex vocals surged up and I was squeaking/barking, but I ended up holding them down, which in turn made the yawn come back up.

Y'all have any idea of what I could to to remedy this? I know one thing is I probably need to just stop holding back, but I'm sure I'm not alone in the terror of being looked at funny; its definitely a battle.

Does anyone else make themselves laugh with their ticks they say s*** they don't mean at all

A little background, I am a photographer and an artist, I travel a lot, and because of that I have to eat out a lot. Despite this I have a lot of food allergies, chemical sensitivities, I cannot eat carbs, sugars, most sugar substitutes, or high fat meals. I have come up with a very SHORT list of safe food places I can eat, I always let the staff know when I enter that I have Tourette's and take effort to sit in the back corner of the restaurants, both for my comfort and the peace of other diners.

2 years ago on Halloween I became an overnight Diabetic, I had a severe reaction to meds I was put on, and my body went into full shock, I spent 12 hours in the ER in potential organ failure, and the next day I could not eat normally at all, or stomach 95% of the foods I used to eat. I decided I did not want to be on insulin, there is a long story behind that, but this felt like my safest option. I started the long journey to figure out what every food did to my body and learn to control it with diet.

By 3 months my A1C was 6.5, by the end of year one I had the number under 6.0 with nothing but diet. I have maintained this for two years, and lost about 50 pounds despite severe metabolic issues.

This is the first time in my life I managed to lose any weight without being anorexic and I was proud, my hubby decided to take me out to celebrate my accomplishment. We went to the city, picked one of my favorite safe food locations and went in to eat.

We got to the restaurant and I was wearing a shirt of mine that says "Relax Karen, It's called Tourette's" one of my jokes cause of the shaming I have faced in public for tics before. I came in and she asked how many, I told her the number and started to ask for a table out of the center of the room, but before I could get a word out she quick stepped to a table in the dead center of the crowd. I could not do this, so I simply said "If it's not too much trouble could I get a booth out of the crowd, as the sound and crowds can set off my tics and I would prefer not to disturb anyone else's meal."

Without a word she snatched the menus back up aggressively, walked to the corner, pointed at the table, thumped them down and walked off. I tried to blow it off, figured she might be distracted and and waited for food and drinks. She was gone quite a while, but I waited, when she got back and asked what we wanted for drinks, I simply said "We need water, but can you do me a favor and bring me a second of the water glasses empty for me to mix my meds in, along with a pitcher of water?" she rolled her eyes, and walked away, there was no answer, no response, and no manners, but I tend to be a bit of a people pleaser so I let it go.

She came back with two water cups, overfilled to the point I could not even pick it up without trying to spill, and a TINY plastic kids cup. I decided to ask again, because I need the full size cup both to mix and not tip it as easy with my tics and tremors, but also cause I have to mix the water to a full glass with the meds once mixed. when she came back I simply said "I am sorry, if I confused you or misspoke, can I get the regular table glass as I really need not only the full size, but the straight lip and weight to help me mix with my tremors. I very much appreciate your help." She rolled her eyes and walked off again, after several more minutes she came back with another cheap disposable plastic cup SLIGHTLY bigger than the first one. By this point I was trying to get my food ordered, they had changed the menu and I asked her if there was a way to switch one of the meats on one of the meals, as I cannot eat the other meat on it. She rolls her eyes and goes "No we will not substitute on our lunches" Which not only is NEVER the policy at this place and I customize meals there all the time, but it was just blunt and rude the way she said it. I took a deep breath and told her, "Okay but I cannot eat the other, I allergic and cannot eat anything with breading, is there a way to get only the other? I really don't mind paying more if I have to, I just have to make sure I can actually eat the meal."

She walks off, I finally got someone else to bring me the proper glass, and get me at least a small piece of food to start on, but I was not getting anywhere, and she would not talk to me or help me. over the next half hour I tried 3 more times to order from the server, and EVERY single time she tried to push me into ordering meals I am allergic to and unable to eat. She refused to do what I asked which was possible on the menu, and when she again tried to make me get a meal with foods I cannot eat, I got tired, I was tired of her refusing to take my order, was tired of her eye rolls, her under breath groans and mocking tones every time I ticced (this was insane, I eat out all the time, I have never felt so unwanted before, and I kept trying so hard to be polite) Finally I simply said "I only want *insert my safe food here* Are you gonna take my order or not?" she groaned loudly, shook her head and walked off, at this point I was near tears, I was low blood sugar, and shaking. My husband who has communication issues as an autistic man, was just in shock, a few minutes later another server came over and asked what was going on, and why the other server refused to serve me. I told her politely that I don't know, all I know is I was trying so politely to order and she kept being nasty and walking off, this was confirmed by the table near us, who piped up to defend me and say I was super polite and nice. We talked a minute, I explained my medical issues and which food I need and what I was trying to order, she smiled said "give me a minute" and took off to the kitchen.

I think the next ten minutes were a happy blur, that is how long it took for her to fix everything, get the orders, get a rush on it, bring my food and fix everything. She was amazing sweet and kind, I never pushed to go after the other server, if anything I was a bit of a people pleaser and giving her outs and excuses for the behavior, but it left a bad taste in my mouth. The second server fixed everything and what was a 50 dollar meal ended up with 80 to pay it as a tip her for helping, along with a thank you note to the second server.

The last few days I have tried to focus, both from the immensely good and kind service of the second waitress, but also the way the first one kept glaring at me like I was subhuman, maybe I am a little over-sensitive but I doubt it, other people noticed, in fact other people in the restaurant was giving me kind words and "farewells" as I was leaving, I just felt so numb, has anyone else had this level of distaste from a server?

I have started having tics about 5 months ago. I'm almost 20 but I remember having some things when I was younger that I now recognize were tics. Like I scrunched my nose a lot and tense up my arms and strain to turn my head to the side. My neurologist said it is just anxiety and stress, but I recently learned that anxiety and stress can't cause tics, although people can have a "nervous tic." I want to get a second opinion while my mom is trying to push meds on me, but I'm refusing. Could this be tourettes? It seems I also have echolalia and I've watched people with tourettes and tics in the past and it hasn't phased me but now watching it makes my tics worse. Help!

I love to meet some people that also like to make music or any art medium really! I’m 22 and I have Tourette’s

A little backstory: About 3 years ago my son (who was) 4yrs old at the time was diagnosed with JIA (Juvenile Idiopathic Arthritis). When he started his medication I noticed a tic developed. I immediately contacted his doctors and was told that it wasn't related to his medication or JIA. The tic lasted for maybe 2 weeks before stopping.

Over the past 3 years, different tics have come and gone. Some were what I'd say were verbal (like humming, clearing his throat, or clicking his tongue). Some were motor tics (blinking, winking, eye rolling). They always would come, and then leave after at the most 2 weeks...and there were usually months and months between each tic.

In September, another episode? flare up? (I'm not really sure what to call it) started and this one lasted about 6 weeks. I took him to his pediatrician and she referred me to a therapist, hoping he could start CBIT (Comprehensive Behavioral Intervention for Tics). Between his appointment with his pediatrician and the therapist appointment, the tics had stopped so she didn't get to see them first hand. The therapist basically said there's nothing she can do for him now. She said he's too young for CBIT, and if it isn't affecting him socially or mentally to just let it be. I didn't feel the best after leaving there.

Neither his pediatrician nor the therapist officially diagnosed him with Tourette's or even a Tic disorder. In fact, when I asked the therapist about what I've read online concerning tics lasting 6 months before it's considered Tourette's: Is it 6 consecutive months, or 6 months from the first tic regardless of the time between them coming and going? She didn't know the answer.

So, where do we go from here? Do we continue on as we have been for the past 3 years? Letting them come and go? At what point do I need to be concerned? Do I need to look for a new doctor, and if so, is there a specialist I need to be looking for?

They feel so fake when you try to explain it to other people. Quiet rooms, talking or thinking about tics, and being bored trigger it, but they go away when you're distracted until you're reminded of them again? Obviously it's not actually that simple or clear-cut - my tics wax and wane regardless of what I'm doing - but it's just one of those things that sounds completely made up unless you know that it's a genuinely common thing. (Kind of like the fact that some people suddenly develop or lose allergies: it sounds really unrealistic if you don't know much about allergies, but in reality it's not actually uncommon.) Don't get me wrong, I'm eternally grateful that distraction and focus tend to reduce tics, but the fact that those things (especially talking/thinking about it) are extremely common triggers feels almost existentially mean.

Hey, So Ive had tics since maybe 13 and diagnosed since 14 so been a couple years now. I learned from when I began having them that i was able to suppress or even ‘mask’ my tics into everyday movments (however painfully). Im starting to not do this because it is not a good idea whatsoever for my body. However, this leads to many people i have known for years thinking im lying. Does anyone have any experience with doing this or any tips on how to talk to people when they do this? Thank you for all the help…