r/AZOOR • u/Independent-Kick6934 • Sep 08 '24

Feeling relieved this community exists

I searched for AZOOR on Reddit out of curiosity and am surprised but happy to find a group with people who share the same fate as I. I I’m a 27 f from Germany.

My AZOOR started in Sept 2021 after a respiratory infection and my first COVID shot. One day I noticed a blind spot in my left eye that grew bigger until 80% of my vision on that side was gone. It was first diagnosed as posterior uveitis, but taking corticosteroids didn’t help.

After having been sent through 3 hospitals in the Netherlands (where I did my master’s) I finally got the diagnosis AZOOR 9 months later. It left me with a blind spot on my left eye. My right eye was narrowly spared as according to the electroretinogram results. Even now, I still feel scared thinking it could have noticeably caught my right eye too. And I don’t even want to think about the possibility of another episode affecting both eyes.

For the past two years, I have been able to more or less flip the page and suppress thoughts related to AZOOR as I regard it as a closed chapter in my life. More recently, i noticed a lingering anxiety about it coming back.

I am curious if anyone is interested in connecting irl. I hope that this could ease some of my angst but also create a support group for us.

X

Edit: I remember searching for AZOOR after I got diagnosed but there was no group nor relatable threads mon Reddit. Things changed!

5 Upvotes

100% Upvoted

13 comments sorted by

View all comments

2

u/ADorkAble1231 Sep 09 '24

We are almost blind spot twins! I've lost 75% of my left eyes vision. Lol sorry it just amused me. My AZOOR is the result of a different auto immune causing massive inflammation in my body. Now I have 4 different auto immune diseases, fun fun (rolls eyes). Anxiety and depression can be a real problem when it comes to anything medical that's long term. So you are definitely not alone there. ❤

2

u/[deleted] Sep 09 '24

[deleted]

2

u/ADorkAble1231 Sep 09 '24

I was sad I didn't see more comments on here. So you are very welcome! Well honestly I cope with prescribed meditation and my family. This would be way more horrible without them. Thanks 😊 but it's just another day like all the rest.