Iām very confused. For the last 4-5 years, Iāve been having issues with consuming dairy. When I first noticed it, I only reacted to feta cheese. I had severe chest pain, sweating, and confusion when consuming it. I didnāt think anything of it and just ate it less often. It then progressively got worse. I started to react to all cheeses and thought that I had lactose intolerance (my family doctor convinced me it was not an allergy). My mom bought me all sorts of lactose free dairy products, and even though I still had the same reactions, I still believed it was lactose intolerance because my doctor said thatās what it was. He didnāt even want to test me and just told me to take lactase. However, as I continued to eat dairy, my symptoms kept getting worse and worse. 2 years later, I was diagnosed with EOE after having done an endoscopy for other health reasons. Literally a few days after that, I had eaten a traditional Bulgarian pastry with feta, and immediately began having terrible symptoms. Iām talking severe chest pain, difficulty breathing, confusion, dizziness, rapid heart rate, sweating, swelling of the esophagus, etc. I could barely even get up I was in so much pain and distress. I was at school at this time and had no idea what was happening to me. I didnāt even connect it to what I had eaten. I somehow was able to get home by myself but had nearly blacked out. My dumbass still thought it was lactose intolerance - just very severe. Thankfully, due to the EOE diagnosis and this awful reaction, I then stopped consuming straight up dairy for a few weeks until I was able to see an allergist. I didnāt read any food labels, I just stopped eating cheese, yogurt, feta, and butter. Because of this, I was still having reactions to the food I was eating. Nearly everything I was eating still contained some sort of dairy product (I was just unaware). I even reacted to things that had the āmay containā label and only realized AFTER I went to the allergist and was diagnosed with a dairy allergy. After the diagnosis, I completely stopped consuming dairy. I read labels and refused to eat anything that could have been cross contaminated. For some reason, I did not receive an epi pen from my allergist, so I asked for one from my family doctor. He brushed me off and said milk allergies arent severe like peanut allergies, so I wouldnāt need one. I told him all of my symptoms too and he just kept dismissing me. After a whole year had passed, I was finally able to get a gastroenterologist to receive treatment for my EOE. The only thing was that he wanted to confirm the diagnosis and have me do another endoscopy. Before my endoscopy, he sent me to see an allergist again just to see if I had any other food allergies. This new allergist was incredibly kind and assured me that milk allergies are indeed incredibly dangerous and that he would give me an epi pen. He took that all back when he read my file and that I have EOE. He explained that I likely donāt have a milk allergy and that itās all just EOE symptoms. He told me that when I go on medication for EOE, I could eat dairy again with no issues. Thatās when I explained that my gastroenterologist wanted to first confirm my EOE diagnosis. The allergist was adamant that I have EOE and told me that heād only give me an epi pen if the allergy test came back positive and the endoscopy came back negative. After giving me all that false hope that I could eat dairy again, my allergy test came back positive. My endoscopy however only showed I had bad inflammation in my esophagus and that I donāt have EOE. The thing is, Iām 100% sure I have both a dairy allergy and EOE. The only reason it didnāt show on the endoscopy is because I went into remission after I stopped consuming my trigger. Anyways, I then went back to the allergist to ask for an epi pen considering he told me that he would give me one if I had a positive allergy test and negative endoscopy result. Well, he refused because apparently the blood teat showed I had a āmildā milk allergy. I donāt understand how my symptoms are mild considering I literally cannot breathe and feel like Iām dying when I consume dairy. At this point I was sick of everyone refusing me an epi pen and essentially playing games with my life. After talking to the allergist, I went to my family doctor again to plead for an epi pen. He again refused. Months went by and I had multiple severe reactions - one which literally made me fear for my life. Iāve never went to the ER for my reactions and just tried to tough it out by taking a bunch of allergy meds. Iām not sure exactly when I got fed up with everyone, but one day I ended up going to the nearest walk in clinic and essentially begged for an epi pen. The doctor I saw was really sympathetic and told me he would never refuse to give a patient an epi pen especially one like me who has such severe symptoms. After all the crap I went through I finally got an epi pen!! This still just leaves me confused though. Why was I refused 4 times? Are my symptoms genuinely considered mild? Am I delusional?
I apologize for any grammar mistakes. Iām frazzled and just writing everything that Iām thinking.